SEND list of Organisation links

In the name of Allah, the Gracious, the Merciful.

Lajna Imaillah UK

Glossary of Terminology

Awareness Event Name



Organisation website

Moebius Syndrome Day 24th January Moebius Syndrome Foundation syndrome/
Angelman Syndrome 15th February Angelman Syndrome Foundation angelman-day/
Trisomy Awareness Month March Soft UK
International Wheelchair Day 1st March Wheelchair Steve or celebrate-international-wheelchair-day

Cerebral Palsy Awareness Month

 March Cerebral palsy organisation

Down’s Syndrome Awareness Week and World Down Syndrome Day

21 March  Down’s Syndrome Association www.downs- 2019/
Purple Day – International epilepsy day 26th March Epilepsy Society
World Autism Awareness Week 1-7 April National Autistic Society
Global Developmental Delay Day 1 May Global Developmental Delay non-profit org  
Cri du Chat Awareness Week 5-12 May Cri Du Chat Syndrome Support Group
Neurodiversity Awareness Week 13-17 May Neurodiversty
Prada Willi Awareness month May Prada Willi Syndrome Association
Williams Syndrome Awareness Month May Williams Syndrome Foundation
Mental Health Awareness Week 13-19 May The Mental Health Foundation health-awareness-week/get-involved
Tourette Syndrome Awareness Month June Tourettes Action
Disability Awareness Day 14th July Disability
National Fragile X Awareness Day 22nd July Fragile X Society
World Duchenne Muscular Dystrophy Day 7th September Muscular Dystrophy UK
Jeans for Genes day Friday 20th September The UK Genetic Disorders Network
ADHD Awareness Month October ADHD foundation
Rett Syndrome Awareness October Rett UK
Spina Bifida Awareness Month October Shine Charity
National Dyslexia Awareness Week 2-8 October British Dyslexia Association awareness-week
World Cerebral Palsy Day 6th October
OCD Awareness Week 7-13 October 2019 OCD UK
Epilepsy Awareness Month November Epilepsy Society
International Day of Persons with Disabilities 3 December United Nations United Nations