In the name of Allah, the Gracious, the Merciful.
Lajna Imaillah UK
Glossary of Terminology
Awareness Event Name |
Date |
Organization |
Organisation website |
| Moebius Syndrome Day | 24th January | Moebius Syndrome Foundation | www.facialpalsy.org.uk/causesanddiagnoses/moebius- syndrome/ moebiussyndrome.org/events/ |
| Angelman Syndrome | 15th February | Angelman Syndrome Foundation | www.angelman.org/make-an-impact/international- angelman-day/ |
| Trisomy Awareness Month | March | Soft UK | www.soft.org.uk |
| International Wheelchair Day | 1st March | Wheelchair Steve or Scope.org | www.community.scope.org.uk/discussion/32019/lets- celebrate-international-wheelchair-day |
|
Down’s Syndrome Awareness Week and World Down Syndrome Day |
21 March | Down’s Syndrome Association | www.downs- syndrome.org.uk/about/campaigns/awareness-week- 2019/ |
| Purple Day – International epilepsy day | 26th March | Epilepsy Society | epilepsysociety.org.uk |
| Global Developmental Delay Day | 1 May | Global Developmental Delay non-profit org | |
| Cri du Chat Awareness Week | 5-12 May | Cri Du Chat Syndrome Support Group | criduchat.org.uk/ |
| Prada Willi Awareness month | May | Prada Willi Syndrome Association | www.pwsa.co.uk/ |
| Williams Syndrome Awareness Month | May | Williams Syndrome Foundation | www.williams-syndrome.org.uk/ |
| Mental Health Awareness Week | 13-19 May | The Mental Health Foundation | www.mentalhealth.org.uk/campaigns/mental- health-awareness-week/get-involved |
| Tourette Syndrome Awareness Month | June | Tourettes Action | https://www.tourettes-action.org.uk/ |
| Disability Awareness Day | 14th July | Disability Awareness.org | www.disabilityawarenessday.org.uk/show/ |
| National Fragile X Awareness Day | 22nd July | Fragile X Society | www.fragilex.org.uk |
| World Duchenne Muscular Dystrophy Day | 7th September | Muscular Dystrophy UK | www.musculardystrophyuk.org |
| Jeans for Genes day Friday | 20th September | The UK Genetic Disorders Network | www.geneticdisordersuk.org/partnershipnetwork/ |
| ADHD Awareness Month | October | ADHD foundation | www.adhdfoundation.org.uk |
| Rett Syndrome Awareness | October | Rett UK | www.rettuk.org/what-is-rett-syndrome/ |
| Spina Bifida Awareness Month | October | Shine Charity | www.shinecharity.org.uk |
| National Dyslexia Awareness Week | 2-8 October | British Dyslexia Association | www.bdadyslexia.org.uk/fundraising/dyslexia- awareness-week |
| OCD Awareness Week | 7-13 October 2019 | OCD UK | www.ocduk.org/ocd-awareness-week-resources |
| Epilepsy Awareness Month | November | Epilepsy Society | epilepsysociety.org.uk |
| International Day of Persons with Disabilities | 3 December | United Nations | United Nations |